Bill's Friends and Family

Tuesday, September 11, 2007

What happened to Bill?... Condensed version - 9/11/2007

So many people have asked....What happened to Bill?
Here is the condensed version to help you understand what we have learned in the past 10 days.

Bill has Acute Myelogenious Leukemia (AML) type M-4 (Myelomonocytic).

It attacks quickly when the white cells mutate and multiply, cluster, and expand to get out of your bone marrow. It surrounds the good red and white cells and keeps them from doing their function in the body. Thus, these new white cells are called “bad white cells” and are a liquid cancer. They do not attach to an organ, but just their numbers can keep an organ from functioning properly. Normal is 3,000-7,000 cells. Bill’s count was 225,000 when we arrived at the hospital. An emergency situation for a Leukemia patient.

He receives 5 units of platelets each day, and when his red cell count is low, he receives
packed red blood cells (which is not the same as plasma) .

Bill is now on Day 6 of 7 days of chemo. The chemo is given 24 hours a day. Then on Sept 19th he will have a second bone marrow aspiration to get a new reading on the bad white cells in his marrow. The goal is zero. If the reading is not zero, he begins a second round of chemo. If that doesn’t work, a bone marrow transplant will be discussed. His white cell count is below 600 at this point, because the chemo is doing it’s job. Bill actually feels better on chemo then he did before he enter the hospital.

We cannot have any flowers, visitors (sterile environment), or fresh fruit (bacteria). At the moment he is feeling up to phone calls, but that may change as the effects of chemo set in. He cannot reach the room phone by his bed. He has too many tubes to worry about a phone cord.

Nancy’s cell phone is 630-240-5724- She is his personal secretary right now.

Mr. John William Huber (patient)
Room 6392-1
Loyola University Medical Center
2160 S. First Ave.
Maywood, IL 60153

Live today to it’s fullest. Because each day is a new adventure.

9 comments:

Anonymous said...

Wonderful, helpful letter Nancy! Jan

Anonymous said...

Bill - great news that the chemo is working. I remember going through each one of those with Shelby. When you get good results it is uplifting and your results are uplifting. I can't wait to see you in one of Shelby's wigs. Send the pictures. You might like them but I think a DORAG would be better. Hope they are feeding you some good food buddy.
Your Friend David of David & Becky

Anonymous said...

Hey, good news! Happy to hear the chemo is doing it's thing........ If you decide on a wig, we want a picture. We've always known you with the "Mr. Clean" look.............! :-)

Nancy, how are you doing? As Bill's "best buddy" we want to know that you have everything you need too.
Love, Karen & Brian

Anonymous said...

Bill,

I missed signing the card at NLS. But no matter - this is a great way to catch up! You and Nancy are in our prayers daily.

- Dale

Anonymous said...

Bill & Nancy - We've been thinking about and praying for boh of you. Nancy did a great job of explaining some very complex things. We know how tough it is to have to learn all of this new "stuff". We're looking forward to the day when all you have to worry about learning is your part in New Life Singers!!

Shalom!
Judy & John McGoogan

Kari said...

Hey Dad - of course I'm your last child to check my email. Thinking of you all the time.

Love you,

Kari

Pat luttrell said...

Bill, so glad to hear the chemo is doing its job.Mark and I are so glad you in such a good hospital, and pray for you and the doctors.
Love Pat and Mark

Anonymous said...

BILL:
SO HAPPY TO CHEMO IS WORKING. OUR PRAYERS ARE WORKING.
I HAD A THOUGHT THAT PERHAPS YOU SHOULD HAVE SOME OF THE "WHITE LIGHTNING" YOU BROUGHT TO TOMMY MENE'S BACHELOR PARTY IN UNIONTOWN WHEN BILL RYAN GOT SLUSHED.
MY BEST TO YOU AND TO NANCY.
ANYTHING I CAN DO TO HELP, JUST GIVE ME A BUZZ.
GOD BLESS,
TOMMY

sherryc. said...

Hi Bill and Nancy, FAITH, DETERMINATION,LOVE,and SUPPORT are what gets us through these times. Please know that our prayers and thoughts are with you.
sHERRY AND TOM